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Betsy Lancefield Lane's avatar

“Yelling at your loved one won’t solve anything, but it’ll make you feel really crappy later.” So good to remember this, whenever we are dealing with a loved one—or anyone—who is not TRYING to make our lives harder (even if that’s the result). Thanks for this reminder.

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Judi Bailey, M.Ed's avatar

I enjoyed this very much - and learned a great deal. Thank you for continuing to keep dementia in the forefront.

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Corina Rodriguez's avatar

One thing I always stress is fir caregivers to find ways to take a break. You can get so worn out and lose patience when you don’t or can’t find ways to take care of the yourself. Trying to do everything by yourself … housework, personal care, checking at night to make sure they have not wandered off … is exhausting.

And the loneness not only for the person with dementia, it is also for the caregiver who frequently loses contact.

A woman whose husband had dementia told me that first you love the person you married then you love the person they become. I would wish that for everyone. Sigh

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Kirbie Earley's avatar

I couldn’t agree more! That’s coming in Part 2

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Jodi Sh. Doff's avatar

great information. All the things we wish we knew in the beginning, eh?

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Kirbie Earley's avatar

For sure!! I knew of the things that were going on with my grandmother, but my kids were young and I wasn't directly involved very much, so much of what I dealt with with my dad was new to me

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Jennifer Friebely's avatar

Thanks for all of the information! My Dad currently likes to pick up leaves in his path on the way to get the morning paper. I think he believes in his own way he’s helping to clean up. lol

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Kirbie Earley's avatar

That's great :) The more they stay active, the better!

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Liz T 🇦🇺's avatar

Another excellent article. I’m in a FB group for family members of dementia sufferers, and one of the phrases that comes up repeatedly is; “Meet them in their world. Don’t expect them to come to yours, they can’t” and I couldn’t put it any better

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Kirbie Earley's avatar

Those facebook groups really are beneficial! I gained a lot from being in one

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Searching for the Words's avatar

My husband has FTD. Before his diagnosis, before I understood he had dementia, we went through a period of several hard months where we were quarrelling constantly. Once I understood he had dementia I stopped arguing with him and trying to reason with him. Peace returned to our home. I believe it’s because his trust in me grew. I’m so thankful because I am hopeful that that foundation of trust will help as his disease progresses. This was an excellent article, Kirbie. Thank you.

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Kirbie Earley's avatar

Thank YOU! My mom continued to argue with Dad until the end. She never got it...that's why I'm dreading her decline so much. I fear it will be more of the same only worse. I'm so happy for you that you were able to figure it out and learn how to navigate it :)

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